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Oxfordshire ME Group for Action (OMEGA) Experiences of Children with ME 
July 2018

Main Report

Executive Summary

Useful ME Publications

Both Oxfordshire support groups, and all the national ME charities have magazines or newsletters. In addition the national groups all produce leaflets and pamphlets that provide helpful information for patients, carers, and health professionals. Some of these can be downloaded for free or purchased at a nominal cost.

OMEGA Research

Membership Survey 2013

Survey of OMEGA members on local NHS services for ME/CFS.

• Full report of 2013 survey
• Summary of 2013 survey findings

 

Research into the views of GPs in Oxfordshire on services for patients with CFS/ME (2012)

• Full report of findings (pdf)
• Summary of findings (pdf)

OMEGA newsletters

Latest issue

• Vol. 97. Spring 2017 - Me Research

Older Newsletters

We regret that old newsletters are currently unavailable due to a copyright issue.

 

Booklets

The first two provide a medical understanding of ME/CFS, and are available from the ME Association.

 

1. ME/CFS/PVFS: An Exploration of the Key Clinical Issues 2008 by Charles Shepherd and Dr Abhijit. pdf format, 803Kb
2. ME Diagnosis: Delay Harms Health 2005 ME Alliance. pdf format, 172kb
3. ME/CFS: A clinical Case Definition and Guidelines for Medical Practitioners. An overview of the Canadian Clinical Guidelines 2003 by Dr. Bruce Carruthers and Marjory van der Sande. pdf format, 975kb
4. Managing ME: Provides a general introduction and advice on management of ME. pdf format, 1.7mb

 

 

Books

These books were voted the most popular Self Help books (AfME, 2005):

 

• Living with ME – Dr Charles Shepherd
• M.E./Chronic Fatigue Syndrome – A Practical Guide – Dr Anne McIntyre
• Better Recovery from Viral Illness – Dr. Darrel Ho Yen
• ME and Post Viral States: the saga of Royal Free Disease – Melvin Ramsay
• M.E. and You – Steve Wilkinson
• Occupational Therapy and Chronic Fatigue Syndrome – Diane Cox
• Recovering From M.E. – A Guide to Self-Empowerment – William Collinge
• Shattered – Life with M.E. – Lynn Mitchell
• Surviving M.E. – Joyce Fox
• Unwind – Dr. Darrel Ho Yen
• Joyful Recovery from Chronic Fatigue Syndrome/ME - Sasha Allenby
• Lost Voices – from a Hidden Illness – Natalie Bolton for Invest in ME

Some of these books are available from the county libraries, or from Omega library.